• BPA (British Porphyria Association)

    Tel: 0300 30 200 30

    Disabled Access: Yes

    Email: helpline@porphyria.org.uk

    Website: http://www.porphyria.org.uk

    Summary

    The British Porphyria Association (BPA) is a national charity for people with porphyria.  Their primary aim is to support and educate patients, relatives and medical professionals about the porphyrias, so as to improve the lives of those living with its effects.

    For more information, please click the following links:

    - What is Porphyria?

    - Living With Porphyria

    - The Porphyrias

    - Testing and Diagnosis

    - Information and Resources

    - Get Support

    - Contact Us

    Calls are most likely to be answered between the hours of 10am and 2pm. The rest of the time there will be an answer phone in operation. Please leave a message and someone will get back to you. 

    This is not a 24/7 number. If you have an acute attack emergency, please contact the National Acute Porphyria Service (NAPS) 24/7 helpline number: 02920 747747. 

    For more information, contact by telephone, email or visit the website.

    Last Updated: 28 February 2024 14:21 by NHS 111 Wales

  • Normal Opening Hours

    OpenClose
    Monday10.00am2.00pm
    Tuesday10.00am2.00pm
    Wednesday10.00am2.00pm
    Thursday10.00am2.00pm
    Friday10.00am2.00pm

Receive this service's address and phone number via email or mobile (free of charge)

Send: From NHS 111 Wales: BPA (British Porphyria Association) - Tel: 03003020030, Website: www.porphyria.org.uk